Ultra-Violet: One Girl's Prader-Willi StoryUltra-Violet: One Girl's Prader-Willi Story
Ultra-Violet: One Girl's Prader-Willi Story
BooksCloudSKU: 9781939418708

Ultra-Violet: One Girl's Prader-Willi Story - Paperback

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Ultra-Violet: One Girl's Prader-Willi Story
Ultra-Violet: One Girl's Prader-Willi Story - Paperback
$25.70
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by Debbie Frisk (Author), Chelsea McCutchin (Author)

Estimated to occur once in every 15,000 births, Prader-Willi Syndrome is a rare genetic disorder that includes features of cognitive disabilities, problem behaviors, and, most pervasively, chronic hunger that leads to dangerous overeating and its life-threatening consequences. Ultra-Violet: One Girl's Prader-Willi Story draws on dozens of intensive interviews to offer insight into the world of a young girl with Prader-Willi Syndrome. For Violet, Prader-Willi Syndrome impacts everything from family and social relationships to education to her own self-image. But with the persistence of her parents and the help of experts, she will eventually discover not just how to live with Prader-Willi Syndrome-but how to live as Violet.

Number of Pages: 82
Dimensions: 0.17 x 9.61 x 6.69 IN
Publication Date: September 08, 2014
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